A few months ago my dad and I were on our way to see a Yankee game, and he haltingly asked if I had noticed anything going on with my son, J, lately. He was four, and I mentioned how J had been getting more aggressive and independent in his behavior and in voicing what he wanted to do (or to not do). My dad kept gently prodding, and I was getting irritated because I felt like there was something specific he wanted from me and he was just beating around the bush. I kept racking my brain trying to think of what the "right" answer could be... and right now I cannot recall if I came up with it, or something very close to it. Either way, my dad mentioned that he noticed J kept tossing his head to the side. We talked about it, I told him that I had noticed it and it seemed to be happening more often... but I had been hoping that it was related to J's hair length - he kept asking to grow it and saying that he did not want to get his hair cut, so we let it grow, and at this point it was hanging down to about the middle of his ears.
I did not tell my dad that I had mentioned the head tossing to my hubs just a few days prior. I did not tell him that I had been mindful about watching J throughout the day more to see how often it happened or if something caused it. I did not tell my dad that when I first noticed it and saw that it happened more frequently that I began to wonder about spectrum disorders or other mental health issues. I did not tell him that I hoped it was just anxiety or stress related... I could not say any of this, because as I listened to my dad he brought up the Autism spectrum... he said that he thought it was a neurological tic... and he mentioned that he began to notice it about 18 months ago. 18 months! All of the air was sucked out of my lungs - how could I not see it?! For eighteen months?
I struggle socially, I did not when I was a kid. In fact, most of my report cards had the hallmark phrase of "she's a delight in class but she talks way too much" on them. I can not tell you the exact time that anxiety took up residence inside of me... but, I know that I was an adult. Married. I do not generally talk to strangers now, there are sometimes weeks that go by that I will even really talk to people I know - outside of the ones that I share living space with.
Since anxiety came along though... I struggle hardcore. Daily. Especially if I have to leave the house and interact with other people. And, I see J struggle. He hangs back around other kids. He does not want to go into Sunday School. He does not want to go back to preschool. He plays by himself. He does not look us in the eyes while talking to us, or while we are talking to him. He laughs when he's nervous. He laughs when we discipline him. Over the past year I have noticed that he will break down into a sobbing mess over the vacuum being turned on... or other seemingly normal things. Until three or four months ago he did not really do imaginative play, I mean... if he did, it was completely internal. He has only recently started playing like that with his sisters, and he does not last long with it.
He is super smart though, so, so bright. He has a huge vocabulary. He loves taking things apart and putting them back together. He loves anything that spins, he always has. He knows his letters, colors, shapes, numbers. He can point out the United States of America on a map, and can show which flag is the USA's in a lineup of 50+. He knows some Spanish and is eager to learn more. Developmentally, we have always heard from his pediatricians that he's very bright... and until recently I honestly did not know that children on the spectrum could be bright. I am embarrassed to even write that here for all of you to read. But, I just assumed that because kids on the spectrum tend to be hyper-focused on some thing, that they were then mentally incapable of focusing on other things... and my brain translated this as a mental deficiency.
Now... I am only an undergrad student. I am nowhere near being capable of saying, "Yeah... this is definitely autism, or Asperger's." Over the past month and a half I have made several phone calls to all sorts of places - even phone calls are something I dread because they mean having to talk to other people - and J has an appointment coming up at a diagnostic and learning resource center. Unfortunately they do not do spectrum diagnostic tests there, however they do other screening and can work to create an IEP quickly if he will need one for school. He has an appointment with a pediatric psychologist who will administer diagnostic testing for spectrum disorders, as well as a host of other things including ADD, ADHD, ODD, anxiety, etc.
I am anxious for some answers, especially answers about what we can do to help him manage the anxiety I see in him already... more to come within the next couple of months on this.

